https://www.bbc.com/news/uk-england-northamptonshire-48051026

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Image caption Charlie Parkes has autism, sensory processing issues, hypermobility, allergies, digestive problems, anxiety and attachment disorder. When five-year-old Charlie Parkes was in the womb, a pregnancy scan revealed a problem with his brain. He spent his first two years of life in hospital having tests. His parents were desperate for answers - but they never came. "We have lots of little pieces of a puzzle, but they don't quite fit together. We haven't completed the picture yet," says his mother Laura. Charlie is one of about 6,000 children born every year with a genetic condition so rare that doctors can't identify it and instead classify it as a Swan (Syndrome Without a Name). Ea... Full story

26 April

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